By Barb Tennant
October 27th, 2006
Under Barb Tennant's article is a handwritten speech by Mrs. Tennant's daughter, Julie Tennant. Julie talks about her Down syndrome, her love of life, and how blessed she is an extra "love chromosome."
In October of 2006, my husband and I visited the Holocaust Museum in Washington, D.C. It was heart-wrenching to see what Nazis did with “special needs” people. Their methods of trying to create a “pure” race” and use the processes of “selection” were horrifying! Those tactics would never be allowed in the United States…would they?
Actually, something similar to genetic "purification" does happen in America today. A simple blood test for pregnant women will show the possibility or probability of giving birth to a baby with Down syndrome. A study in the March 2006 issue of the American Journal of Obstetrics and Gynecology reveals what happens to babies who are prenatally diagnosed with Down syndrome. Billed by the Harvard University Gazette as “the largest and most comprehensive study on prenatally-diagnosed Down syndrome to date,” the article reveals that of all the women who test positive for the probability of this kind of birth, 80-90 percent choose to abort. The sad situation is made worse by the fact that some prenatal testing for Down syndrome is wrong 20-40 percent of the time.
Is this any better than the Nazi tactics for doing away with the unwanted? No! We have tidied the process and made it legal but the end result is the same. A Canadian study of 22,000 women who received prenatal diagnosis for Down syndrome found that 88 percent chose abortion. That would count for 19,360 blessings unborn.
What I find so ironic is that if Down syndrome babies were considered a separate species, they would all be eligible for the “endangered or threatened species” list.
The Endangered Species Act of 1973 was created to “protect endangered and threatened species and take steps to recover these species as key components of America’s heritage.” An “endangered species is one that is in danger of extinction throughout all or a significant portion of its range.” Killing 88 percent of a species would certainly qualify as being in danger of extinction!
To help conserve genetic diversity, the ESA defines “species” broadly to include subspecies and distinct populations. The ESA decides which species to list by a priority system designed to direct their efforts towards those in greatest need. In their own words, they give no preference to popular species or so-called “higher life forms.” Shouldn’t pre-born Down syndrome people at least be considered “a life form”? Where are the PETA people? Why isn’t the ACLU jumping to defend this life issue?
If Down syndrome children were identified as an endangered species, organizations all over the world would probably pour resources into a “Save The Down Syndrome Creatures” foundation. There would be rallies, posters, and bumper stickers. Congress, on behalf of the American people, protects many varieties of mammals, birds, reptiles, amphibians, fishes, clams, snails, insects, arachnids, crustaceans, and several plant species. As of October 10, 2006, a total of 1,009 different species are listed as endangered and 302 as threatened in the United States alone. But alas, a human being who will potentially have Down syndrome isn’t given as much value as one of these. DDT was even banned in order to preserve the eggs of bald eagles—that is, would-be eagles! But we won’t protect “would-be” people with Down syndrome? Why is there no outcry in the media?
I have tried to understand the evolutionist and pro-choice groups’ points of view. I try to keep an open mind, but their arguments seem to contradict themselves. “We’ll protect these but not those…these creatures are valuable but those lives are worth less than our freedom…” Perhaps my strong opposing stance comes from the fact that my own mother tried unsuccessfully to abort me, 58 years ago. The fact that I can write this and even have an opinion is an amazing gift. There isn’t a day that goes by that I am not aware of how precious life is. If abortions were legal in 1948, I would have no voice to speak on this issue or any other.
The other reason I feel so strongly about this subject is that our youngest daughter Julie is 31 years old and has Down syndrome. Last September, Julie spoke to over 500 people at a Sanctity of Life event and received a standing ovation. Her entire being radiates with a profound simplicity and honesty that this complicated world desperately needs. Why 80 to 90 percent of women abort when they think they may have a child – a gift! – like this is beyond my thinking.
To me, pro-choice isn’t a matter of which of my fetuses should live. It’s a matter of choosing to accept the fetus I conceived and raise them to their highest potential.
Julie's Speech on Sancitity of Life Sunday:
(go to this site to read her speech)
http://www.centerforajustsociety.org/press/forum.asp?nav=publications&cjsForumID=1023
Barbara and Julie Tennant live in Syracuse, New York. Barbara's husband--Julie's dad--is named Randy, and the Tennants have three other children and four grandchildren. Barb and Randy have a passion to help build strong families. Please email your comments to forum@ajustsociety.org.
Tuesday, July 15, 2008
Thursday, May 15, 2008
Some Sadie Funnies!
Kiersten was babysitting... and I got into permanent marker!
I'm not looking!!
Sadie in Grandma's new dog Stella's cage... Sadie loves to share- especially when you share with her!
Superstar!
My Kiersten... Happy 14th Birthday
So, it's a few days after her birthday and I am just getting to writing this. Partly because we were busy with birthday and things; but, mostly because I thought it would take too much out of me emotionally. Raising Kiersten has been easy and hard. She is my first, the one I experiment on and the one I make most of my mistakes on.
It took us 2 years to get pregnant with Kiersten. I was so ready to be a mom and to bring a little one into this world. Her pregnancy was difficult. I was very sick and put on bedrest for such a long time. It was worth it though... On May 7th, 1994- after 36 hours labor, 8 days late, and only 12 hours and one minute before Mother's day- Kiersten Paige Teague made her arrival. Her birth was amazing. I have never felt that close to my Heavenly Father. I felt as if he handed her to me personally.
She was an easy baby, toddler and child. Just recently I have spent many nights awake thinking of the trials and obstacles she faces. Kiersten is not the ordinary teenager. You know, the one who is mouthy, boy crazy, always on the phone and wants everything they own to have a "name" on it. Infact, she doesn't answer the phone, could care less what kind of clothes she owns, gets along great with boys- but has never mention anyone as "cute" and is one of the most polite children you will ever meet. She even got an award last year from her teacher who said, "in all the 18 years I have taught... I have never met a more polite and kind person as Kiersten." He even thought she was a joke- because she went up to him everyday and said thank you- not the buttkissing thank you we find abundant in the teenage world- a real thank you.
Anyway, Kiersten is extremely bright (really- this is not a mom talking, I'm serious!!) and just as shy. It has been torture to see her go through her JR high years alone in a crowd. I often have to go to Scott for advice on raising her- she is sooooo different than me. She is on the dance team- even a captain, but doesn't feel like anyone knows her. She has a few really good friends; but, I try to tell her how hard it is to be a friend to someone who doesn't give back. She is loyal, nice, kind, and funny- but she will never call anyone, go up to them or just "hang out" unless someone else starts it.
She is like the butterfly in the "Parable of the Butterfly". She is struggling and working with all her might to break out of her cocoon. It is hard to watch her struggle- but I know, she will always be a good mom, good wife and good friend. That the rest of her life is not about JR high and being out-going... it's about doing good, growing and being faithful. But, she is good. She is kind. She is smart. She is beautiful. And she is faithful. Happy Birthday Kiersten. I love you forever, I like you foralways... Forever and Always my baby you'll be!
It took us 2 years to get pregnant with Kiersten. I was so ready to be a mom and to bring a little one into this world. Her pregnancy was difficult. I was very sick and put on bedrest for such a long time. It was worth it though... On May 7th, 1994- after 36 hours labor, 8 days late, and only 12 hours and one minute before Mother's day- Kiersten Paige Teague made her arrival. Her birth was amazing. I have never felt that close to my Heavenly Father. I felt as if he handed her to me personally.
She was an easy baby, toddler and child. Just recently I have spent many nights awake thinking of the trials and obstacles she faces. Kiersten is not the ordinary teenager. You know, the one who is mouthy, boy crazy, always on the phone and wants everything they own to have a "name" on it. Infact, she doesn't answer the phone, could care less what kind of clothes she owns, gets along great with boys- but has never mention anyone as "cute" and is one of the most polite children you will ever meet. She even got an award last year from her teacher who said, "in all the 18 years I have taught... I have never met a more polite and kind person as Kiersten." He even thought she was a joke- because she went up to him everyday and said thank you- not the buttkissing thank you we find abundant in the teenage world- a real thank you.
Anyway, Kiersten is extremely bright (really- this is not a mom talking, I'm serious!!) and just as shy. It has been torture to see her go through her JR high years alone in a crowd. I often have to go to Scott for advice on raising her- she is sooooo different than me. She is on the dance team- even a captain, but doesn't feel like anyone knows her. She has a few really good friends; but, I try to tell her how hard it is to be a friend to someone who doesn't give back. She is loyal, nice, kind, and funny- but she will never call anyone, go up to them or just "hang out" unless someone else starts it.
She is like the butterfly in the "Parable of the Butterfly". She is struggling and working with all her might to break out of her cocoon. It is hard to watch her struggle- but I know, she will always be a good mom, good wife and good friend. That the rest of her life is not about JR high and being out-going... it's about doing good, growing and being faithful. But, she is good. She is kind. She is smart. She is beautiful. And she is faithful. Happy Birthday Kiersten. I love you forever, I like you foralways... Forever and Always my baby you'll be!
I'm going get me back- and a get Wii too!!!
So, I've decided it's about 5 weeks until Sadie's 4th birthday and I'm tired of stressing, grieving and using her as an excuse not to take care of myself! I've made a commitment to myself to spend the next 5 weeks focusing on finding me- emotionally, physically and spiritually. So, I started with going to the gym today for 1 hour on the eliptica machine. I burned over 500 calories... awesome! I'm going to write a positive thing about myself everyday and read an church article or scriptures. Here's some extra incentive... Scott agreed that if I exercise for 30 calendar days (excluding Sundays) we can get a Wii. Yeah!!!!!!
EMOTIONAL HEALTH - So here's my positive thing- My most valued role is mother. I live and breathe for my kids. I care sooo much about their welfare that I screw up. I get high strung and stressed... WAIT THIS IS SUPPOSE TO BE POSITIVE... I love my kids so much I would do anything for them.
PHYSICAL HEALTH - gym 1 hour- over 500 calories!!
SPIRITUAL HEALTH - When Life Is Getting You Down
By Val D. MacMurray, Ph.D.
http://lds.org/ldsorg/v/index.jsp?vgnextoid=2354fccf2b7db010VgnVCM1000004d82620aRCRD&locale=0&sourceId=251f05481ae6b010VgnVCM1000004d82620a____&hideNav=1
"The idea that all stress is bad and should be avoided is only one of the myths of stress. Another myth goes to the other extreme: “Stress is unavoidable, so why try?” The truth is really somewhere in between. The most intelligent way of managing stress is to take a look at your life and plan to reduce or eliminate unnecessary stress. "
EMOTIONAL HEALTH - So here's my positive thing- My most valued role is mother. I live and breathe for my kids. I care sooo much about their welfare that I screw up. I get high strung and stressed... WAIT THIS IS SUPPOSE TO BE POSITIVE... I love my kids so much I would do anything for them.
PHYSICAL HEALTH - gym 1 hour- over 500 calories!!
SPIRITUAL HEALTH - When Life Is Getting You Down
By Val D. MacMurray, Ph.D.
http://lds.org/ldsorg/v/index.jsp?vgnextoid=2354fccf2b7db010VgnVCM1000004d82620aRCRD&locale=0&sourceId=251f05481ae6b010VgnVCM1000004d82620a____&hideNav=1
"The idea that all stress is bad and should be avoided is only one of the myths of stress. Another myth goes to the other extreme: “Stress is unavoidable, so why try?” The truth is really somewhere in between. The most intelligent way of managing stress is to take a look at your life and plan to reduce or eliminate unnecessary stress. "
Thursday, May 8, 2008
Inclusion vs Special Day Classes
Today Frank Buckley, the Chief Executive Officer of the Down Syndrome Educational Trust and Sue Buckley’s son came to our monthly meeting for our learning program at the Down Sydrome Association of Orange County. He was there because they are starting a new program (or corporation) in the United States that will help bring some of the teaching methods here. It is really quite interesting- things like training aides (because you don't have to have any formal training in most areas), the see and learn program, etc. He told us they are going to hold a conference here in 2009 with Sue Buckley and specialist from around the world.
So, here's the interesting fact he shared with us about inclusion. He said that the number of kids with ds included in the United Kingdom is 80%. Guess how many kids are included in the US???? Only 7%!! Wow, what a difference. No wonder so many districts have such a hard time with inclusion. Although it is the law, or our right, to include first- it is a realitively new thing and they don't have that much experience with it. I know this is a touchy subject for some- so let me say right now.... I respect anyone's decision either way. You know your kid the best and you know what kind of class setting is best for them. I would like to have Sadie included- but that will be determined by her and her needs. Right now we are in a SDC for preschool and I couldn't be happier with the program or the teacher!
But, they did a study on kids who were from two different areas- one that offered SDC's (in a separate school) and one that offered inclusion. So the study didn't have variables like that kids that are a little more high functioning, etc. that typically fight for inclusion. He said that the kids who were included were 2-3 grades adhead of the SDC classes. Once again... no judgements- just interesting. He did say one thing, since we have the option- what would it hurt to try inclusion? It is easier to start with inclusion and change to SDC. If you start with SDC it is like swimming upstream. It is like changing their whole world and teaching environment.
So, here's the interesting fact he shared with us about inclusion. He said that the number of kids with ds included in the United Kingdom is 80%. Guess how many kids are included in the US???? Only 7%!! Wow, what a difference. No wonder so many districts have such a hard time with inclusion. Although it is the law, or our right, to include first- it is a realitively new thing and they don't have that much experience with it. I know this is a touchy subject for some- so let me say right now.... I respect anyone's decision either way. You know your kid the best and you know what kind of class setting is best for them. I would like to have Sadie included- but that will be determined by her and her needs. Right now we are in a SDC for preschool and I couldn't be happier with the program or the teacher!
But, they did a study on kids who were from two different areas- one that offered SDC's (in a separate school) and one that offered inclusion. So the study didn't have variables like that kids that are a little more high functioning, etc. that typically fight for inclusion. He said that the kids who were included were 2-3 grades adhead of the SDC classes. Once again... no judgements- just interesting. He did say one thing, since we have the option- what would it hurt to try inclusion? It is easier to start with inclusion and change to SDC. If you start with SDC it is like swimming upstream. It is like changing their whole world and teaching environment.
Sunday, May 4, 2008
Sew, wish me luck- part two!
It's not going so well. I've tried to take in the pants five times- and each time the legs are skinny and the butt is- well, a balloon! I even had my friend Ruthann come and help. It's just not going to work.
So, on to plan B. We went and got some more pants that only need to be taken in a little. I will have to find a new vest (because we changed the color scheme from browns to black)- but I will go back to Goodwill tomorrow! I'll let you know how plan B goes- wish me luck again. I'm not sure I'm up to a Plan C.
*** Also, we got our new grass yesterday. It is sooooo beautiful. Can't wait to get that bug guy over and start planting in the planter. We have to plant the vegetables soon... they are ready! ***
So, on to plan B. We went and got some more pants that only need to be taken in a little. I will have to find a new vest (because we changed the color scheme from browns to black)- but I will go back to Goodwill tomorrow! I'll let you know how plan B goes- wish me luck again. I'm not sure I'm up to a Plan C.
*** Also, we got our new grass yesterday. It is sooooo beautiful. Can't wait to get that bug guy over and start planting in the planter. We have to plant the vegetables soon... they are ready! ***
Ancient Chinese Writing- how much do you know about it???
Madison came home on Thursday and told me she had a research project due on Monday. What??? Are you kidding me??? When I asked her why hadn't she told me earlier, she responded, "We've been working on it in class- it's no big deal!" No Big Deal?? Ok, so I didn't even ask her what her topic was until Friday- because I was a little to upset to deal with it any sooner. Ancient Chinese writing. Oh, that should be easy (hear my tone of voice??) Well, yesterday I told her to take everything out and start working on it.
I've always had to walk the kids through their projects- they are smart enough to do it on their own- maybe not that motivated or sure of themselves. Well, you know what?? She has taken so many good notes. Nothing plagiarized. Just a lot of good notes. She is ready to start typing up her paper and she has had little help from me. I still expect to help her for about three hours tonight after rehearsal; but, wow- she really has become a self motivated, hard working and responsible student.
I've always had to walk the kids through their projects- they are smart enough to do it on their own- maybe not that motivated or sure of themselves. Well, you know what?? She has taken so many good notes. Nothing plagiarized. Just a lot of good notes. She is ready to start typing up her paper and she has had little help from me. I still expect to help her for about three hours tonight after rehearsal; but, wow- she really has become a self motivated, hard working and responsible student.
Saturday, May 3, 2008
Parable of the Butterfly
We used this poem for a lesson once about individual worth. It hit me hard because it was about the time of Sadie's transition into public school at the age of three. I spent the first three years of her life doing hands on therapy and trying to save her life. At three I was asked to surrender my role at co-therapist and trust the school system to know, love and teach my child 3 1/2 hours a day. This poem gave me a little understanding and faith in God's will.
Parable of the Butterfly
A man found a cocoon of a butterfly. One day a small opening appeared. He sat and watched the butterfly for several hours as it struggled to force its body through that little hole.
Then it seemed to stop making any progress. It appeared as if it had gotten as far as it could, and it could go no further.
So the man decided to help the butterfly. He took a pair of scissors and snipped off the remaining bit of the cocoon. The butterfly then emerged easily. But it had a swollen body and small, shriveled wings. The man continued to watch the butterfly because he expected that, at any moment, the wings would enlarge and expand to be able to support the body, which would contract in time. Neither happened! In fact, the butterfly spent the rest of its life crawling around with a swollen body and shriveled wings. It never was able to fly.
What the man, in his kindness and haste, did not understand was that the restricting cocoon and the struggle required for the butterfly to get through the tiny opening were God's way of forcing fluid from the body of the butterfly into its wings so that it would be ready for flight once it achieved its freedom from the cocoon.
Sometimes struggles are exactly what we need in our lives. If God allowed us to go through our lives without any obstacles, it would cripple us. We would not be as strong as what we could have been. We could never fly!
I asked for Strength.....And God gave me Difficulties
to make me strong.
I asked for Wisdom.....And God gave me Problems to solve.
I asked for Prosperity.....And God gave me Brain and Brawn to work.
I asked for Courage.....And God gave me Danger to overcome.
I asked for Love.....And God gave me Troubled people to help.
I asked for Favors.....And God gave me Opportunities.
I received nothing I wanted ....And everything I needed!
I asked for Wisdom.....And God gave me Problems to solve.
I asked for Prosperity.....And God gave me Brain and Brawn to work.
I asked for Courage.....And God gave me Danger to overcome.
I asked for Love.....And God gave me Troubled people to help.
I asked for Favors.....And God gave me Opportunities.
I received nothing I wanted ....And everything I needed!
Thursday, May 1, 2008
My Madison... The Pre-Teen!
Madison turned 12 one month ago and she is full speed ahead into teenagehood! She can roll her eyes so fast if you blink you may miss it. She does a lot of "huffing"- and when she is called on it she just says, "Whatever" and walks away. She will be the end of me... I know it! She spends way too much time in front of the mirror, on the computer, on the phone, changing her clothes and asking for the newest phone, a laptop or a digital camera.
But today, as she was running one of Kiersten's birthday invitations up to a friends door... I noticed something. Something that was there all along but is hard to see when you are trying to teach her that the kid doesn't get the last word, or that as a family we should be our own cheerleaders.
You know what? Madison is absolutely beautiful. She has beautiful hair, a beautiful smile, sparkling eyes and a cute figure. From the outside she is someone other's admire. As I was looking at her bounce and float to the car I saw something else. I saw her beautiful laugh, her beautiful smile, her beautiful sense of humor, her acts of kindness, her desire to be good, her intelligence, her hardworking attitude, her faithfulness, her love for others and her good nature. I saw a daughter of God. Someone our Heavenly Father loves and cheers for. Someone who isn't perfect, but is good!
I am thankful for those 2 minutes I could watch Madison run up to that door. Because in those two minutes I was blessed to be reminded of who Madison is. I am going to try to keep this memory close to my heart.... because I am sure the teenager will appear again.
But today, as she was running one of Kiersten's birthday invitations up to a friends door... I noticed something. Something that was there all along but is hard to see when you are trying to teach her that the kid doesn't get the last word, or that as a family we should be our own cheerleaders.
You know what? Madison is absolutely beautiful. She has beautiful hair, a beautiful smile, sparkling eyes and a cute figure. From the outside she is someone other's admire. As I was looking at her bounce and float to the car I saw something else. I saw her beautiful laugh, her beautiful smile, her beautiful sense of humor, her acts of kindness, her desire to be good, her intelligence, her hardworking attitude, her faithfulness, her love for others and her good nature. I saw a daughter of God. Someone our Heavenly Father loves and cheers for. Someone who isn't perfect, but is good!
I am thankful for those 2 minutes I could watch Madison run up to that door. Because in those two minutes I was blessed to be reminded of who Madison is. I am going to try to keep this memory close to my heart.... because I am sure the teenager will appear again.
Sew, wish me luck!
One of my motto's is... "If I can't staple, tape or glue it- I don't do it!" I always thought I would learn to sew when my kids were older. When I was pregnant with Kiersten my friend Melanie taught me to sew a complicated dress- but I had morning sickness and now everytime I see a sewing machine I get a little sick! I never thought my kids would get too old that they wouldn't want me to sew them those cute sundresses. The only use they have for my sewing skills- or lack of them- would be Halloween costumes or the occasional mend or button replacement. Well, my kids are getting a little old for me tape or staple their Halloween costumes.
So... I'm in trouble- I have to alter Kiersten's "Step in Time" costume (the chimney sweep number from Mary Poppins- but better!). I thought, their just chimney sweeps, how hard can this be? Well, I got a pair of women's size 6 slacks from Goodwill that have pleats and a bubble butt. Kiersten is a size 0/1 with not much of a butt and a lack of confidence in my altering ability. Right this moment she is seam ripping our first attempt!
I wish my mommy was here to help- wish me luck!!
So... I'm in trouble- I have to alter Kiersten's "Step in Time" costume (the chimney sweep number from Mary Poppins- but better!). I thought, their just chimney sweeps, how hard can this be? Well, I got a pair of women's size 6 slacks from Goodwill that have pleats and a bubble butt. Kiersten is a size 0/1 with not much of a butt and a lack of confidence in my altering ability. Right this moment she is seam ripping our first attempt!
I wish my mommy was here to help- wish me luck!!
Wednesday, April 30, 2008
Black Widows- Yuck
Do you know what a black widow looks like?
Unfortunately I do!!! They are all over my backyard. Not little ones- One that have a butt the size of a large grape. I can't even stand to write about it. I'm worried about anyone getting bit.. but especially Sadie because of her low immunity.
Unfortunately I do!!! They are all over my backyard. Not little ones- One that have a butt the size of a large grape. I can't even stand to write about it. I'm worried about anyone getting bit.. but especially Sadie because of her low immunity.
Anyway, we are tearing our backyard apart, taking out a planter, building a new planter, taking out some trees, putting in sprinklers, and getting ready to put in grass this Saturday. When they took out the original planter they found several dozen. They said they got them all- but NO! When some of them were displaced they just found a home in our bikes and pool toys. When I moved the bikes the other day I found 3. Today when Hannah was swimming she threw in a pool toy and a huge one landed in the pool. Tomorrow first order of business is to call a bug guy!!
The Teague Curse!
It's been a long standing joke in our family that everytime we get to know a family really well either they move to Utah or we move out of state. I have always been a bad long distance friend (I've lost a few because of it). I understand the ones who have let me go... But, I am thankful for those who have stuck with me.
One of the reasons I wanted to blog (besides keeping a journal for our family) is to stay in touch with those who have left us or we have left behind.
Here's a short list of the families we have been part from:
Adamson's- Moved to Utah
Page's- Moved to Utah
My Family- moved up to Washington with us- and we left them!
Draper's- We left them in Washington
Wentz's- also in Washington
Wolslegger- Utah
Peyson's- moved to Mississippi
Aaron's- moved to Texas
Ortiz- Utah
Peterson's-moved to Utah
Carey's- Utah
Bergeson's- Moved to Utah
Harper's moving to New Mexico
I miss these families so much! Hoping more don't leave us!
One of the reasons I wanted to blog (besides keeping a journal for our family) is to stay in touch with those who have left us or we have left behind.
Here's a short list of the families we have been part from:
Adamson's- Moved to Utah
Page's- Moved to Utah
My Family- moved up to Washington with us- and we left them!
Draper's- We left them in Washington
Wentz's- also in Washington
Wolslegger- Utah
Peyson's- moved to Mississippi
Aaron's- moved to Texas
Ortiz- Utah
Peterson's-moved to Utah
Carey's- Utah
Bergeson's- Moved to Utah
Harper's moving to New Mexico
I miss these families so much! Hoping more don't leave us!
Tuesday, April 29, 2008
Here's Weird Al
My friend Melanie sent the picture of the kids with "Big Al"! (as she called him)
Jalissa, Jessalyn, Weird Al, Jaron, Kiersten, Madison & Hannah in awe of the idol himself!!
Well, it's been a week!
So much for trying to blog at least every other day... I guess I think there is nothing interesting for me to blog- but how can that be in the Teague household?????
So, I'll just leave you with a poem I found on someone else's blog.. one I have loved many times in the past 3 years.
The Creed of Babies with Down Syndrome
My face may be different
But my feelings the same
I laugh and I cry
And I take pride in my gains
I was sent here among you
To teach you to love
As God in the heavens
Looks down from above
To Him I'm no different
His love knows no bounds
It's those here among you
In cities and towns
That judge me by standards
That man has imparted
But this family I've chosen
Will help me get started
For I'm one of the children
So special and few
That came here to learn
The same lessons as you
That love is acceptance
It must come from the heart
We all have the same purpose
Though not the same start
The Lord gave me life
To live and embrace
And I'll do it as you do
But at my own pace
So, I'll just leave you with a poem I found on someone else's blog.. one I have loved many times in the past 3 years.
The Creed of Babies with Down Syndrome
My face may be different
But my feelings the same
I laugh and I cry
And I take pride in my gains
I was sent here among you
To teach you to love
As God in the heavens
Looks down from above
To Him I'm no different
His love knows no bounds
It's those here among you
In cities and towns
That judge me by standards
That man has imparted
But this family I've chosen
Will help me get started
For I'm one of the children
So special and few
That came here to learn
The same lessons as you
That love is acceptance
It must come from the heart
We all have the same purpose
Though not the same start
The Lord gave me life
To live and embrace
And I'll do it as you do
But at my own pace
Tuesday, April 22, 2008
10 things about...
After watching Winn Dixie, maybe one of my favorite movies, I had a few things on my mind. One is about my cat Ella- who I will write about some day soon. She is my Winn Dixie- she is determined to have me meet everyone in this neighborhood!
Another thing the movie had me thinking about is the scene where the little girl askes her dad to tell her 10 things about her mother. It was a very touching scene- and I can't wait to read the book because I'm sure it will give us even more information about her mother.
So, I've decided to start writing 10 things about... well, whatever I think about that day. I guess I should probably start with my family members. But, I've decided to write 10 things about California (in a positive note- the good things).
So here goes.
10 things about California I like...
1. the weather of course!! I sat by the pool in the sun today- it was beautiful.
2. the amusement parks- Disneyland annual pass holder here
3. the beach
4. the different cultures (although this is probably on the list of things I don't like about California
5. the down syndrome community. It is very strong here and we have one of the best associations that has a terrific learning program!
6. Orange County Song and Dance (this also is on the things I don't like)
THIS IS HARDER THAN I THOUGHT IT WOULD BE!!
7. Being close to Scott's family. Although we are close in area, I wish we spent more time together.. it seems we only see them one holidays.
8. Good friends who care about our family.
9. Scott's job! This job has been both rewarding professionally and financially.
10. We are close to three temples- Newport Beach 20 mins away, Los Angeles 45 mins away, and San Diego 2 hours away.
There I did it! That was hard- I'll work on family member's later.
Another thing the movie had me thinking about is the scene where the little girl askes her dad to tell her 10 things about her mother. It was a very touching scene- and I can't wait to read the book because I'm sure it will give us even more information about her mother.
So, I've decided to start writing 10 things about... well, whatever I think about that day. I guess I should probably start with my family members. But, I've decided to write 10 things about California (in a positive note- the good things).
So here goes.
10 things about California I like...
1. the weather of course!! I sat by the pool in the sun today- it was beautiful.
2. the amusement parks- Disneyland annual pass holder here
3. the beach
4. the different cultures (although this is probably on the list of things I don't like about California
5. the down syndrome community. It is very strong here and we have one of the best associations that has a terrific learning program!
6. Orange County Song and Dance (this also is on the things I don't like)
THIS IS HARDER THAN I THOUGHT IT WOULD BE!!
7. Being close to Scott's family. Although we are close in area, I wish we spent more time together.. it seems we only see them one holidays.
8. Good friends who care about our family.
9. Scott's job! This job has been both rewarding professionally and financially.
10. We are close to three temples- Newport Beach 20 mins away, Los Angeles 45 mins away, and San Diego 2 hours away.
There I did it! That was hard- I'll work on family member's later.
Monday, April 21, 2008
Close Encounters with the famous!
I know I already wrote about Weird Al, but right after I blogged it (that sounds so weird- I'm blogging) a post on Downsyn was all about famous encounters. So, here is some of what I posted.
[quote="naomid"]I'm usually crap at recognising people, but living in Santa Monica I did see a few actors - [/quote]
I'm with you there!! During the opening of the Snow White Play at Disneyland I spent 2 1/2 hours in line infront of Rosana Arquette. My girls were 2 of 100 mini Snow Whites for the opening night and I had to spend all that time waiting in line, 7 months pregnant in the rain. I didn't know it was her until we were walking the red carpet and all the photographers were yelling out to her and she stopped to take pictures. There were so many stars there- like Kristi Yamaguchi (sp?) and Micheal Eisner.
Also, one of my favorites was when I was younger and Mork and Mindy was on TV. I met Robin Williams at a play that Mindy was staring in. He is one of my absolute favorites- although now I think he may be a little crazy!
Last Christmas during our Christmas Party for dh's work we were sitting there talking with the Canadian's who were excited to go "star hunting" after dinner. I looked up and there was Bob Newhart. He wasn't tooo thrilled with all our pointing and staring.
Last but not least, anyone here watch Yo Gabba Gabba? The boys who created that show are from two local bands. Aquabats and the Moon Monkeys. My husband is the back-up drummer for the Moon Monkeys and one of my best friend's husband, Ben Bergesen, was an orginial Aquabat and helped create the Moon Monkeys. I also grew up with Boyd Terry who is also an orginial Aquabat. Anyway, during one of the band outings Scott was talking to Parker (the main creater) and told him how much Sadie loves Yo Gabba Gabba. He gave her the complete first season on DVD.
There's many more... but these are some of my favorites!
[quote="naomid"]I'm usually crap at recognising people, but living in Santa Monica I did see a few actors - [/quote]
I'm with you there!! During the opening of the Snow White Play at Disneyland I spent 2 1/2 hours in line infront of Rosana Arquette. My girls were 2 of 100 mini Snow Whites for the opening night and I had to spend all that time waiting in line, 7 months pregnant in the rain. I didn't know it was her until we were walking the red carpet and all the photographers were yelling out to her and she stopped to take pictures. There were so many stars there- like Kristi Yamaguchi (sp?) and Micheal Eisner.
Also, one of my favorites was when I was younger and Mork and Mindy was on TV. I met Robin Williams at a play that Mindy was staring in. He is one of my absolute favorites- although now I think he may be a little crazy!
Last Christmas during our Christmas Party for dh's work we were sitting there talking with the Canadian's who were excited to go "star hunting" after dinner. I looked up and there was Bob Newhart. He wasn't tooo thrilled with all our pointing and staring.
Last but not least, anyone here watch Yo Gabba Gabba? The boys who created that show are from two local bands. Aquabats and the Moon Monkeys. My husband is the back-up drummer for the Moon Monkeys and one of my best friend's husband, Ben Bergesen, was an orginial Aquabat and helped create the Moon Monkeys. I also grew up with Boyd Terry who is also an orginial Aquabat. Anyway, during one of the band outings Scott was talking to Parker (the main creater) and told him how much Sadie loves Yo Gabba Gabba. He gave her the complete first season on DVD.
There's many more... but these are some of my favorites!
Sunday, April 20, 2008
Kiersten met an idol!
We went over to California Adventure after lunch on friday to hangout at bug land. The Adamson kids waited til we could join them because all the rides are for little ones like Sadie. After a few rides they decided to go on the pillbug bumper cars. Sadie was too small so we watched from outside. All of the sudden Scott spotted this goofy looking guy with long curly hair and jokingly said, "look they are on the ride with Weird Al!" We laughed and told Kiersten to go "bump" him. I didn't think much of it... but after Scott watched him awhile he was sure it was him. I, however, was not convinced. He said the smile confirmed it.
So, Scott took Kiersten and Jaron on a quest to meet him. Whatever, I was on my way to Grizzly River Run- they could make fools of themselves if they wanted to. They were taking so long Melanie went to find them... and who did she find them with? Yes, it really was Weird Al! Kiersten was in awe. Melanie was able to take a picture of the kids with him (I'll post it when she sends it). You would have thought they had seen Zack Efron - or Jonny Depp.
Kiersten's friends Kimmi and Lauren love Weird Al too. Later that evening Kiersten saw Kimmi at rehersal. Boy was Kimmi jealous!
So, Scott took Kiersten and Jaron on a quest to meet him. Whatever, I was on my way to Grizzly River Run- they could make fools of themselves if they wanted to. They were taking so long Melanie went to find them... and who did she find them with? Yes, it really was Weird Al! Kiersten was in awe. Melanie was able to take a picture of the kids with him (I'll post it when she sends it). You would have thought they had seen Zack Efron - or Jonny Depp.
Kiersten's friends Kimmi and Lauren love Weird Al too. Later that evening Kiersten saw Kimmi at rehersal. Boy was Kimmi jealous!
Thursday, April 17, 2008
Jackie
Yesterday my family was able to visit with my brother, his wife, and our two nephews for a few hours at Disneyland. It was so great to see them for the first time in a couple of years. Jackson (or Jackie or Sunny) was a hoot! He doesn't watch TV and isn't real familiar with the characters at Disneyland... but that didn't stop his excitment and enthusiasm as he explained everything he had seen earlier that day. The first thing he wanted to do was go see "Dumpy" - that would be Dumbo. Our conversation included, "Hey ladies, let me tell you about when they made butter in the good old days!" and "Do you know what they do to pigs? They skin them. That means they cut off the skin. (this is where I ask him why anyone would do that- and he replied) To get ham of course!!"
Unforunately, Candida and Julian are both not feeling well. We will be meeting up with them again on Friday. I look forward to many more cute stories to share with you.
Unforunately, Candida and Julian are both not feeling well. We will be meeting up with them again on Friday. I look forward to many more cute stories to share with you.
Tuesday, April 15, 2008
It's been awhile!
I would like to start with the sad observation that Sadie has decided to embrace the "stubborn" part of the Down Syndrome gene and throw out the "always smiling" part. What happened to my sweet little angel? I'll tell you what happened, she decided that it is entirely more fun to stick her tongue out (while saying, "I funny mommy"), run from me any free chance, sit down and pout when she doesn't get her way, and quickly go ask another member of our family when mommy won't let her get her way!
On a much better note, I am proud to announce that Hannah Montanna , formerly known as Sadie, has decided to come and live with us. And remember, she must be referred to as "Hannah Tanna"! For those of you who are not so familiar with this beautiful teen idol, let me give you a brief description of what I have seen in the last month. She loves to put her hands out stretched at the side of her head and yell "moose", she is often caught singing "best of both worlds" while shaking her hips and falling into the middle splits, and she won't let you sing along with her--- she is a professional after all.
Hannah is already tan and has had lots of fun swimming in the pool already! She has really made a lot of friends this year and enjoys school much more. Hannah did not have a free day during Spring Break- as she played hostess and guest with many of her friends. She moved up to Madison's old cruiser, and has had a lot of fun riding around the neighborhood.
Madison was one of four 7th graders who made the Bell Dance team this year. She is really excited to work with Mrs. Adling and looks forward to a fun and social Jr. High experience. She was named student of the month this month- something she has always wanted. On April 1st she turned 12 and entered into the Young Women's program. Wow, where did that time go?
Kiersten is getting ready to compete in her last competition this Saturday. She is sad that her time on the Bell Dance team will be over shortly and feels like, "I'll be nothing once its over". I guess a common response from a teenager... but she really has grown these past two years, especially while serving as a captain this year.
I plan on keeping up on my blog- mostly for journaling, but hopefully Nana, Grandma and long distance friends can enjoy some of our daily fun!!!
On a much better note, I am proud to announce that Hannah Montanna , formerly known as Sadie, has decided to come and live with us. And remember, she must be referred to as "Hannah Tanna"! For those of you who are not so familiar with this beautiful teen idol, let me give you a brief description of what I have seen in the last month. She loves to put her hands out stretched at the side of her head and yell "moose", she is often caught singing "best of both worlds" while shaking her hips and falling into the middle splits, and she won't let you sing along with her--- she is a professional after all.
Hannah is already tan and has had lots of fun swimming in the pool already! She has really made a lot of friends this year and enjoys school much more. Hannah did not have a free day during Spring Break- as she played hostess and guest with many of her friends. She moved up to Madison's old cruiser, and has had a lot of fun riding around the neighborhood.
Madison was one of four 7th graders who made the Bell Dance team this year. She is really excited to work with Mrs. Adling and looks forward to a fun and social Jr. High experience. She was named student of the month this month- something she has always wanted. On April 1st she turned 12 and entered into the Young Women's program. Wow, where did that time go?
Kiersten is getting ready to compete in her last competition this Saturday. She is sad that her time on the Bell Dance team will be over shortly and feels like, "I'll be nothing once its over". I guess a common response from a teenager... but she really has grown these past two years, especially while serving as a captain this year.
I plan on keeping up on my blog- mostly for journaling, but hopefully Nana, Grandma and long distance friends can enjoy some of our daily fun!!!
Monday, June 18, 2007
Some notes from Sadie's IEP
Just thought I would share another post from downsyn I made right after the IEP...
"I'm toast!!! I can't believe how exhausting these past few days have been. I decided early that I wasn't going to stress out and make my family miserable while I waited to see what the school district thought about Sadie. I was doing a good job until yesterday about 2 pm. Last Tuesday she was assessed. I loved the team and thought that although she didn't do everything she could- she also did things we don't see her doing consistently- so everything pretty much came out even in the wash! After the assessment they keep saying how attentive she was, what a long attention span she had and how determined she was even though she didn't complete a lot of the tasks. Ok- I'm reading between the lines.. that means she will do well in therapy because she will sit and try- and she needs more instruction because she wasn't completing the tasks. Yesterday my husband got the report faxed to his office. He started reading it to me, and I am a visual person, so I tried to listen and not make judgments. I agreed with almost all of the results. What she could and couldn't do- or at least how she was testing. I've been told she isn't a good tester- but you just need to observe and see she does really well. Every therapist, dr., you name it tells me how high functioning she is. As I'm hearing the results I hear, her cognitive level is very low functioning. Ouch!!!!~ What is he talking about? The tester called and I asked him 4 times who she is being tested against, all three year olds, typical 3 yr olds or just kids with special needs. He tells me just kids with special needs. So she is in the 1 % of kids with special need? Like kids who won't give any eye contact, kids who have no control of their body?? I was devastated. I cried for 4 hours. I finally decided he didn't know Sadie and I knew she was sitting on my floor reading her book, singing songs and was happy. I have one kids who scores 99%-100% across the board on all her standardized tests and can't follow a three step command, freaks out in a bind and who struggles to be happy everyday. She's the one I would worry about- but the school system thinks she has it made. Long story short- he tested her on an average IQ range. She scored in the middle of 1%. I'll take that. I know she is mentally retarded. As much as I hate it, it comes with the Down Syndrome. 1% on an average IQ is not in the mentally retarded range. So, even though she did not do as well as we know she can- and even though she was delayed- they said she is within normal IQ range. Not by much- but she is. Then they spent the first 20 mins. telling me how great she did and how much they think she will thrive in school. I'm so exhausted. I should have never listened to them in the first place. Sadie is Sadie and no test is going to change that. I will have to brag a little- her receptive language is 34 months (she was 35 at testing) and her social emotional is 38 months. How could any kid with that kind of receptive score be very low functioning??? I think I'm the one who needs help since I listen to him!"
And here is an update after some replies (I'm not sure they understood what I was saying)...
"Thanks everyone! I happen to have my friend who came into town a couple of minutes before the IEP with me. She is a special ed. teacher for severally profound disabled children in Utah. She was horrified they would give her a test that they do not use on children with Down Syndrome (because it is for typical children). Which is really not a good test for her anyway, because she is more audio and it was a visual acuity test with fine motor skills- and she has poor wrist and shoulder strength and movement. I think they were trying to compliment Sadie because she was so cooperative- but the misunderstanding was devastating. I really thought they were telling me she was profoundly retarded. Which would be hard no matter what- but came out of no where! Every therapist she has ever worked with has been amazed at her abilities. Good news... they gave her more speech than usual because of her attention span. And they were so worried about the misunderstanding-that they gave her OT through the summer with an evaluation due by the start of the school year and a PT and APE evaluation. She is actually getting more therapy than I thought she would. Currently she does not qualify for speech because she does not have enough of a delay. Don't get me started on that one!!!! Her articulation has a lot to be desired and she still is delayed."
"I'm toast!!! I can't believe how exhausting these past few days have been. I decided early that I wasn't going to stress out and make my family miserable while I waited to see what the school district thought about Sadie. I was doing a good job until yesterday about 2 pm. Last Tuesday she was assessed. I loved the team and thought that although she didn't do everything she could- she also did things we don't see her doing consistently- so everything pretty much came out even in the wash! After the assessment they keep saying how attentive she was, what a long attention span she had and how determined she was even though she didn't complete a lot of the tasks. Ok- I'm reading between the lines.. that means she will do well in therapy because she will sit and try- and she needs more instruction because she wasn't completing the tasks. Yesterday my husband got the report faxed to his office. He started reading it to me, and I am a visual person, so I tried to listen and not make judgments. I agreed with almost all of the results. What she could and couldn't do- or at least how she was testing. I've been told she isn't a good tester- but you just need to observe and see she does really well. Every therapist, dr., you name it tells me how high functioning she is. As I'm hearing the results I hear, her cognitive level is very low functioning. Ouch!!!!~ What is he talking about? The tester called and I asked him 4 times who she is being tested against, all three year olds, typical 3 yr olds or just kids with special needs. He tells me just kids with special needs. So she is in the 1 % of kids with special need? Like kids who won't give any eye contact, kids who have no control of their body?? I was devastated. I cried for 4 hours. I finally decided he didn't know Sadie and I knew she was sitting on my floor reading her book, singing songs and was happy. I have one kids who scores 99%-100% across the board on all her standardized tests and can't follow a three step command, freaks out in a bind and who struggles to be happy everyday. She's the one I would worry about- but the school system thinks she has it made. Long story short- he tested her on an average IQ range. She scored in the middle of 1%. I'll take that. I know she is mentally retarded. As much as I hate it, it comes with the Down Syndrome. 1% on an average IQ is not in the mentally retarded range. So, even though she did not do as well as we know she can- and even though she was delayed- they said she is within normal IQ range. Not by much- but she is. Then they spent the first 20 mins. telling me how great she did and how much they think she will thrive in school. I'm so exhausted. I should have never listened to them in the first place. Sadie is Sadie and no test is going to change that. I will have to brag a little- her receptive language is 34 months (she was 35 at testing) and her social emotional is 38 months. How could any kid with that kind of receptive score be very low functioning??? I think I'm the one who needs help since I listen to him!"
And here is an update after some replies (I'm not sure they understood what I was saying)...
"Thanks everyone! I happen to have my friend who came into town a couple of minutes before the IEP with me. She is a special ed. teacher for severally profound disabled children in Utah. She was horrified they would give her a test that they do not use on children with Down Syndrome (because it is for typical children). Which is really not a good test for her anyway, because she is more audio and it was a visual acuity test with fine motor skills- and she has poor wrist and shoulder strength and movement. I think they were trying to compliment Sadie because she was so cooperative- but the misunderstanding was devastating. I really thought they were telling me she was profoundly retarded. Which would be hard no matter what- but came out of no where! Every therapist she has ever worked with has been amazed at her abilities. Good news... they gave her more speech than usual because of her attention span. And they were so worried about the misunderstanding-that they gave her OT through the summer with an evaluation due by the start of the school year and a PT and APE evaluation. She is actually getting more therapy than I thought she would. Currently she does not qualify for speech because she does not have enough of a delay. Don't get me started on that one!!!! Her articulation has a lot to be desired and she still is delayed."
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