"Life With My Special K's" is 1 year old and there is a giveaway!! - Day #6

Life with my Special K's is celebrating her 1 year blogversary today. I can't think of a better site to visit for DS, family, military, parenting, etc. Her little girl Kennedy has fought AML, had major neck surgery and many other set backs. During this time a baby has been born, dad is serving our country and Renee has never stopped caring for her family. This website is full of hope, fun stories and courage!!!

http://www.myspecialks.com/

Visit her post to see what she is giving away in honor of her bogversary.

"The Only Thing That is Constant is Change" - Day #5

While watching leaders in our church during General Conference one talk really spoke to me as a mother. Most of this post will be thoughts or quotes from President Thomas S. Monson. He spoke about "finding joy in the journey now" and "adapting to changes in our lives". This is something I have struggled with since Sadie was born. I often find myself to wrapped up in therapies, Dr. appt's, IEP's, and preparing for her future.

He challenged us to "find joy in the journey" because someday "each of us will run out of tomorrows". Also, he told us "don't spend so much time looking ahead and planning for the future that you forget the here and now." I can't tell you how many times I've thought when my house is clean I will be happy. When I've lost more weight I can hang out or go to this place. How many times have I missed out because I was planning for the future??

We should "work today on making memories for the future" and "fill our days with those things we cherish most." After I am done with this I am still going to do several loads of laundry, clean the girls room and fix dinner- but I am going to take a few minutes here and there to hug someone, read a book to a little one, compliment others and maybe write a friend and tell them how much I appreciate them. His last words of counsel..."Shower others with love and gratitude in word and deed". Not only will this help us live in the moment, it will help us build relationships that will strength us in the future.

I challenge each of you to make a goal today that will help you "find joy in the journey!"

Stubborn Sadie - Day #4

I hate to keep harping on the stubborn side of Sadie; but, it really has started to consume our lives! Last year she lost her snack on two occasions because she decided she didn't want to line up and go in from recess. The first time I was horrified that her teacher could be soooooo mean as to make her sit there and watch all her classmates eat without her. I quickly learned Ms. Katie knows what she is doing and that Sadie would understand there are consequences to actions.

Guess what???? I think Sadie forgot about the "no snack if you don't line up" rule over the summer. We have been in school for 3 1/2 weeks and she has missed snack THREE TIMES already. That's not the worst of it. She has even gone to line up and decided to look Ms. Pam right in the eyes and run off to take another turn at the slide!!!

Also, one day a little boy named Adam didn't like the task they were doing so he decided to throw his book in the middle of the circle. Sadie quickly told him, "No Adam, no throwing!". (This is what they call- "helping classmates keep on task". I call it "being bossy"; nevertheless, it is a new behavior Sadie has acquired this year!) Ms. Pam told Sadie, "I'll help Adam- you go finish your project."

I don't think Sadie liked this to much because she went and got her book, looked Ms. Pam in the eyes, and threw her book in the circle. Can you say stubborn????

I know that this whole 31 for 21 is suppose to be for down syndrome awareness... and I think that means to help others see how wonderful living and caring for a child with ds is. So, know that all of these "behaviors" are exciting, frustrating, interesting, a pain in the butt, but most of all NORMAL 4 YEAR OLD BEHAVIOR!!! And what is more wonderful than looking at your child and seeing beyond the ds?

It's Halloween Time... - Day #3

We were driving down the street right before dusk. It's a beautiful, clear and hot (80 degree) day. Sadie started yelling, "bats, bats, bats mommy". I was a little confused until I looked in the rear view mirror and noticed she was pointing at the seagulls flying around. I asked her, "are you pointing at the birds?"


"No mommy, bats in the sky. That's aweeeeesome!!"



I wonder what they are teaching her at school right now???

Halloween is coming toooo soon and I asked each kid to decide what they wanted to dress as for Halloween by Oct. 1st. No more last minute costumes (Kiersten) and no more changing at the last minute (Hannah). My only problem is I haven't been able to talk Sadie into something cute.... she wants to be "MUNO" from Yo Gabba Gabba. As many of you know- we love Yo Gabba Gabba- but, Muno looks like a giant boy part!!! I am horrified- can't she just be a ladybug or Minnie Mouse??????

"Pets, Mommy Pets!!!!" - Day #2

Let me give you a little background on this story... although I am really enjoying the freedom public school brings to me as a mom- I am a homeschooler at heart. With that in mind I can not count the hours I have spent teaching my children phonics. I have more than a dozen books for each grade on the subject.

So, when I was in our learning program at the Down Syndrome Association of Orange County last month and heard that "our children just don't do well with phonics. It is best to teach whole language"- I just about freaked!!! I've heard this before, but I haven't really thought about it because Sadie was so far from reading. Well, we are getting ready for Kindergarten and pre-reading is a skill we've been working on.

I knew if I was ever going to get on board with this philosophy I needed to understand the reasoning behind it. They explained that because of the hearing and articulation problems our children most likely have it makes it difficult to really work with phonics. OK... that sounds understandable. I'll try whole words; but, I'm not giving up on phonics!

This month we worked on word to word matching. We have two boards with six words each- Foods and Pets. We also have a book that has a title page just with the word and the following pages have a picture and corresponding word. At the end of each book there is a vocabulary or word building page with all the words listed without pictures.

Let me just testify to you right now- IT WORKS! Sadie was able to match word to word successfully (except a few times when she matched dog and frog- most likely looking only at the ending of the word). She was able to read the books and even sight read a few of the words without pictures in the back of the book. But, here is the real test...

The other day while in a parking lot I heard Sadie repeatedly telling me, "Pets, mommy pets. Pets, pets mommy!" After a few times of hearing her chant this I looked back and noticed her pointing. She was pointing at the Pet City sign. What???? Yes, I have taken her in there and there were pictures of animals on the windows. But, she wasn't pointing at the windows and I never say, "let's go to the pet store". I do say let's go see the animals, dogs, cats, get bunny food, etc. Never Pet Store. I think "Pet" is just a weird and formal word.

Sadie saw the word and recognized it as the word she read in her book. She read a whole word. Could I have taught her phonics to read it... yes, it would take awhile but yes. Do I think phonics are important? YES, YES, YES! Did this experience make both Sadie and I excited to work on reading... YES, YES, YES!!

Just a cute P.S. to this story. Sadie knew how excited and proud we were of her when she read "Pets"-- so the other day she took my hand and lead me to her teacher and said, "Pets, mommy, pets". She wanted me to tell Ms. Katie and Ms. Pam! Good job Sadie!

Day #1- 31 for 21

Today is the first day of blogging of 31 days for awareness for Trisomy 21 (or ds). I don't have much time and I can't make this life consuming- so I thought I would start with a quick story.

Today, while sitting at the computer Sadie decided she would paint her nails bright green. She was able to unscrew the bottle and paint her nails, hands, legs, and skirt. Before daddy could see what she was up to, she went into the bathroom and unscrewed the nailpolish remover- splashed a little on her hair and clothes, then turned on the water to wash down a little.

After cleaning herself up a bit, she walked to daddy and said, "I'm wet!". Needless to say, we aren't sure if we are more scared that she was able to get into all these toxic things... or proud that she was able to problem solve all by herself.

Don't worry... all toxic chemicals are now in the top cupboard away from little Sadie!!!!!!